I'm ridiculously thrilled by some solid progress on Miriam's health issues.

To try to abstract things to a point of easy understandability, there is a test, test foo, that Miriam has had done several times.

In the past, she has always gotten result A. Result A is not indictive of auto-immune issues. However, it's well-documented that result A can * ( Read more... )

A couple days ago, Miriam and I were playing Baldur's Gate 3 together and I was hit hard by the sadness of not having had girl experiences growing up. One of the characters reconnected with a childhood friend, and they talked about spending time together in a hidden place that other people didn't know about, doing things like talking and braiding ( Read more... )

After waiting months for the rheumatology appointment today, and spending one of those months trying and failing to get the test that LifeLabs failed to run done, there was no appointment this morning. The doctor's assistant called and said the doctor tried calling Miriam but she never answered. Miriam and I were both sitting on the couch, waiting ( Read more... )

And a post from yesterday, while I was at the university campus waiting for Miriam:

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Miriam is teaching in a large lecture hall that doesn't have an obvious accessible entrance for the lecturer. Because she is still getting a handle on her capabilities, and she's never been in these rooms, she didn't think about asking for accommodations beyond ( Read more... )

Miriam said she didn't mind if I wrote about her doctor appointment today.

The office of Miriam's GP made an appointment to see her after the X-ray results (showing polyarticular degenerative changes at the DIP joints - this is not fibromyalgia) from December came back. We were both hoping that she would have something to say about...something? ( Read more... )

Last year, I wrote:

"I keep reminding myself, and Miriam and I keep reminding each other, that life will not always be like this. These things will pass. It won't always be like this.

As I said earlier this year, that's really all I want out of this new year. To find myself in a position, at the end of it, where my partner and I can stop telling ( Read more... )

Tests ordered by Miriam's second rheumatologist are providing more information that may be leading toward a diagnosis of psoriatic arthritis. It's one of the things we've been suspecting for years. I just hope so much that we have an answer for her soon and she can start on treatment that will reduce her pain and make her more physically functional ( Read more... )

Miriam got some of the blood test results from the set that the new rheumatologist ordered. Her C-reactive protein, which indicates inflammation in the body, is over 4 times high normal. It has been 4-5 times high normal for 2 years now, and maybe longer than that since it wasn't being tested. She's been having serious pain and other symptoms ( Read more... )

These past couple of weeks were difficult in a few ways. Miriam's parents were for a week. Her dad is pretty conservative in a lot of ways and I got kind of upset with him a few times. I got sick about halfway through their visit. My best guess is I caught something while at the dentist without a mask while people were in close vicinity of my open ( Read more... )

Ella is confused by the sounds I make while watching voice training videos and it's pretty adorable. She's sitting in my lap and sometime she looks at my mouth or looks me in the eyes, I think trying to figure out if she should be paying attention or doing something.

A blanket we bought came with a blue satin ribbon as part of the packaging, so I ( Read more... )